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My Invisible MS, 30th May World MS Day

The 2019 World MS Day campaign is called 'My Invisible MS' (#MyInvisibleMS) and the theme is Visibility. 

I personally love this campaign theme, straight away my mind considers all aspects of life that aren't necessarily 'visible'.
That warm, fuzzy feeling you get when you receive or give an act of kindness.
The overpowering gratitude for a rainy day indoors with nothing to do.
Or, a debilitating disease that tries every day to break you. But you know its worth and everyday....you win.

The past 12 months with my MS have been, insightful. Although my physical,  visible symptoms have been largely at bay, I have faced some of the nastiest dragons alone, invisibly. 
My vision has been one of my most challenging MS symptoms. It still worsens, I still see a neurologist who tells me its permanent damage from frequent Optic Neuritis and there is nothing more that can be done. Then I see my Ophthalmologist quarterly who believes I am suffering from Ocular Hypertension and early onset Glaucoma, he prescribes me daily eye drops to bring down the pressure. What I see (not much ha-ha) is my vision getting worse. Being thrown back and forward between Health Professionals is draining. I've given up pursuing that avenue further after the fifth 'second' opinion, 
Instead, now I look for support. This is the invisible symptom nobody talks about.

When I meet my friends for lunch at a local cafe they help me read the menu. I dread having to recognize someone in a public place. No longer can I watch a movie with subtitles or read text on the television. The font size on my laptop and cellphone is set to 200% magnification. I use the 'voice-over' function on my GPS. But nobody can see that - neither can I for that matter!

Today is not 'feel sorry for people with MS day' rather 'let us help you understand our MS day'.

Shefali Tsabury, author of The Conscious Parent says "We approach everything with full acceptance and a heightened appreciation for each moment. Accepting life doesn't mean lying down in defeat, but vigorously accepting life's as is nature. Accepting life as is requires awareness of all that is before us, then choosing how we respond. Then and only then, do we experience the consciousness to affect the circumstances we find ourselves in"

I find a great deal of comfort knowing I am not alone and I have all the skills and belief I need to live a simple life; content, happy and positive for the future.

Join me today spreading an awareness for Multiple Sclerosis and all other invisible battles.

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